The mission of this blog. Part 1.

Hello my name is Amanda Green. The reason that I have started this blog is to raise awareness of childhood disorders and rare diseases. My beautiful three year old daughter was born about 8 weeks early. We were told she was perfectly healthy given the circumstances. We lived our lives well. At about 6 days old she woke us up screaming as if she were being murdered. It really concerned us since she almost never cried. As we tried everything to get her to calm down we racked our brains to try and figure out what might be wrong. It hit us about an hour later that she hand yet to have a bowel movement since bringing her home from the hospital. We proceeded to call her doctor who told us to give her an enema. We did this frequently over the next year and a half and switched formulas and put her on different medications. Finally we got her into and gastroenterologist who proceeded to tell us that she was lazy. I could not bring my self to believe that by him glancing at her and us telling him that she has had this problem from birth that he could possibly be right. We fought and fought with him to run tests. Now at three in a half and after finding her a new specialist we are told that she suffers from hirschsprung disease.